Burden of special needs/medical parents
Parents’ Voice: Parents’ Emotional and Practical Coping with a Child with Special Needs
Findings revealed that parents from all groups, were experiencing a difficult period following diagnosis and in their daily routines. They described a lot of stress, anxiety, and anger. Some parents described their relationships as unstable and as involving conflicts and disagreements, others adopted a more positive mindset and with the challenges they were facing.
‘I shouldn’t have to educate their school about what autism is’: Community attitudes and parent reports of autistic primary and secondary school experiences in Australia
Our surveys with parents of autistic students, one in 2020 and 2021, found many barriers within the school system that make it hard for autistic children to feel included and supported. This lack of support negatively impacts the well-being of autistic children. It is important to note that this study focused on the perspectives of parents, not the students themselves.
The Effect of Autism Spectrum Disorder on Family Mental Health: Challenges, Emotional Impact, and Coping Strategies
The care of individuals with Autism Spectrum Disorder (ASD) has a significant and multifaceted impact on family life, deeply affecting the mental health of caregivers. These effects manifest in the form of chronic stress, anxiety, and interpersonal difficulties, altering family dynamics. The quality of life of caregivers varies depending on the coping strategies they employ, which are crucial for their emotional well-being.
Understanding the Challenges and Stressors Faced by the Parents of Children with Autism Spectrum Disorder: A Narrative Review
This review specifically focuses on mental health challenges, lack of sufficient time for self-care, problems related to communication, challenges associated with caring for an autistic child, stigmatisation related to mental health disorders, and the financial burdens faced by the parents of autistic children.
Burden of treatment, emotion work and parental burnout of mothers to children with or without special needs: A pilot study
Additional psychological, cultural and environmental factors should be investigated, in order to gain new perspectives regarding Parental Burnout as a psychological phenomenon that affects parenting and the ability to utilize coping mechanisms for mothers generally and for mothers of children with special needs especially.